Vulvodynia

“Vulvodynia is a complex pain syndrome of the vulva.
It’s characterised by unexplained chronic pain or
discomfort in the vulva, which lasts at least three months”.1

Umbrella
What may the Vulvodynia Umbrella include?

Depending on the Source (DotS) this Umbrella may include:

  • Burning Vulva Syndrome
  • Dysaesthetic/Dysesthetic Vulvodynia
  • Essential Vulvodynia
  • Generalized Unprovoked Vulvodynia
  • Generalized Vulvodynia
  • Localised Provoked Vulvar Pain
  • Localised Vulvodynia
  • Pudendal Neuralgia
  • Provoked Vulvodynia
  • Superficial Dyspareunia
  • Unprovoked Vulvodynia
  • Vestibulitis
  • Vestibulodynia
  • Vulval Pain
  • Vulvar Vestibulitis Syndrome (VVS)
  • Vulvodynia

Vulva

What is the vulva?

DotS the definition of the vulva may vary. In Vulva & Vaginal Irritation: What Is the Vulva? the (Australian) Jean Hailes for Women’s Health’s (JH) definition is:

“Vulva is the general name given to the external parts of the female genitals”.2

Vulval Pain

What is vulval pain?

DotS the definition of vulval pain may vary. In Medical Advice: Vulval Pain – What Is Vulvodynia? Caredownthere.com.au explain:

“If you have been searching the internet looking for answers about vulval pain you will have come across the term “vulvodynia” and have probably been confused about what it means. Basically, it is a term that simply means vulval pain. Vulvodynia is a very vague term and you will find that different doctors have different ideas about what it means. It is a bit like the term “headache”. We all know what that means, but we also know that there are many causes: anything from stress to a brain tumour!

Vulvodynia is also known as the “burning vulva syndrome””.3

Vulvodynia

What is vulvodynia?

DotS the definition of the vulvodynia may vary. In Vulvodynia & Vestibulodynia: What Is the Vulvodynia? the JH’s definition is:

“Vulvodynia is a complex pain syndrome of the vulva. It’s characterised by unexplained chronic pain or discomfort in the vulva, which lasts at least three months. It is diagnosed when all other conditions have been excluded. Vulvodynia includes vestibulodynia and clitorodynia”.4

In What Is Vulvodynia? [+ Diagrams] the (United States) National Vulvodynia Association’s (NVA) definition is:

“Vulvodynia, simply put, is chronic vulvar pain without an identifiable cause. The location, constancy and severity of the pain vary among sufferers. Some women experience pain in only one area of the vulva, while others experience pain in multiple areas. The most commonly reported symptom is burning, but women’s descriptions of the pain vary. One woman reported her pain felt like “acid being poured on my skin,” while another described it as “constant knife-like pain””.5

In Vulvodynia the (United Kingdom) Vulval Pain Society’s (VPS) definition is:

“Vulvodynia is the term used to describe the condition experienced by women who have the sensation of vulval burning and soreness in the absence of any obvious skin condition or infection. The sensation of burning and soreness of the vulva can be continuous (unprovoked vulvodynia), or on light touch, e.g. from sexual intercourse or tampon use (provoked vulvodynia)”.6

Terminology Changes

What are some vulvodynia terminology changes?

In Vulvodynia the VPS explain:

“Women who have unprovoked vulvodynia were formerly known as having dysaesthetic (or dysesthetic) vulvodynia where pain was felt without touch. Vestibulodynia is the term replacing vestibulitis where pain is felt on light touch. A recent change in the terminology used to describe these conditions means that the description of women with vulvodynia can be more uniform amongst health professionals and patients. Many women have symptoms which overlap between both conditions.

Dysaesthetic vulvodynia and vestibulitis are now obsolete terms that you’ll hear less and less frequently as they are phased out”.7

Localised Vulvodynia

What is localised vulvodynia?

DotS the definition of localised vulvodynia may vary. In What Is Vulvodynia? What Is Localised Vulvodynia? [+ Diagrams] the NVA’s definition is:

“Most women have pain at only one vulvar site. If the pain is in the vestibule, the tissue surrounding the vaginal opening, the diagnosis is vestibulodynia (formerly known as vulvar vestibulitis syndrome (VVS))”.8

Provoked Vulvodynia (Vestibulodynia)

What is provoked vulvodynia?

DotS the definition of provoked vulvodynia may vary. In What Is Vulvodynia? What Is Localized Vulvodynia? [+ Diagrams]  the NVA explain:

“The majority of women with localized vulvodynia have Provoked Vestibulodynia (PVD), in which pain occurs during or after pressure is applied to the vestibule, e.g., with:

  • Sexual intercourse
  • Tampon insertion
  • A gynecologic examination
  • Prolonged sitting and/or
  • Wearing fitted pants”.9

Unprovoked Vulvodynia

What may the pain be like in unprovoked vulvodynia?

In Vulvodynia: What Are the Symptoms? the VPS elaborate on:


Vulvodynia“The pain described by women with unprovoked vulvodynia is often of a burning, aching nature. The intensity of pain can vary from mild discomfort to a severe constant pain which can even prevent you from sitting down comfortably. The pain is usually continuous and can interfere with sleep. As with long-term pain from any cause you can have good days and bad days. Itching is not usually a feature of the condition”.10

The VPS also note:

“The pain in unprovoked vulvodynia is not always restricted to the vulval area (area of skin on the outside of the vagina), and some women get pain elsewhere. This can be around the inside of the thighs, upper legs and even around the anus (back passage) and urethra (where you pass urine). Some women also have pain when they empty their bowels. Unprovoked vulvodynia can have an effect on sexual activity and is associated with pain during foreplay and penetration.

In some women with unprovoked vulvodynia the burning sensation can be generalised over the whole genital area. Alternatively it can be localised to just the clitoris (clitorodynia) or just one side of the vulva (hemivulvodynia)”.11

Generalized Vulvodynia

What is generalized vulvodynia?

DotS the definition of generalized vulvodynia may vary. In What Is Vulvodynia? What Is Generalized Vulvodynia? [+ Diagrams] the NVA’s definition is:

“For women with generalized vulvodynia (GV), pain occurs spontaneously and is relatively constant, but there can be some periods of symptom relief.

Activities that apply pressure to the vulva, such as prolonged sitting or sexual intercourse, typically exacerbate symptoms”.12

Duration

How long may vulvodynia symptoms last?

In Vulvodynia: Symptoms & Causes – Overview the (United States) Mayo Clinic explain:

“The pain, burning or irritation associated with vulvodynia can make you so uncomfortable that sitting for long periods or having sex becomes unthinkable. The condition can last for months to years”.13

Cause

What causes vulvodynia?

In Vulvodynia: What Causes It? the VPS explain:

“For a minority of women with vulvodynia, back problems such as slipped discs and others can cause spinal nerve compression and cause referred pain to the vulval area. In the majority of cases, however, the precise cause of the nerve damage or irritation remains unknown. Vulvodynia is known as an idiopathic condition, i.e. a condition with no known cause”.14

In Vulvodynia: Symptoms and Causes – What Causes Vulvodynia? the (United States) Cleveland Clinic also note:

“Researchers aren’t sure what causes vulvodynia, but there are many potential causes, including:

  • Inflammation
  • Hormonal factors
  • Genetic (inherited) factors
  • Injury to your nerves (neuropathic problems)
  • Long-term reactions to past vaginal infections
  • Weakened pelvic floor muscles or muscle spasms
  • Irritation from harsh products that touch your skin”.15

Common or Not

How common is vulvodynia?

In Vulvodynia & Vestibulodynia: What Is Vulvodynia? the JH note:

“It can affect women of all ages, although vulvodynia generally occurs between the ages of mid 20s to 60s. It’s estimated that around 15% of women will experience the condition in their lifetime”.16

Health Care Provider

What if I think I have vulvodynia?

If you think you have vulvodynia, it may be in your best interest to choose to talk to your health care provider about this. The Mayo Clinic explain:

“If you have pain in your genital area, discuss it with your doctor or ask for a referral to a gynecologist. It’s important to have your doctor rule out more easily treatable causes of vulvar pain — for instance, yeast or bacterial infections, herpes, precancerous skin conditions, genitourinary syndrome of menopause, and medical problems such as diabetes.

It’s also important not to repeatedly use over-the-counter treatments for yeast infections without seeing your doctor. Once your doctor has evaluated your symptoms, he or she can recommend treatments or ways to help you manage your pain”.17

In Vulvodynia: Frequently Asked Questions – A Note From Cleveland Clinic the Cleveland Clinic also encourage us to seek help:

“Contact your provider if you’re experiencing pain in your vulva. Your pain may be related to a specific condition, or it may be vulvodynia. Either way, there are likely treatments that can help. At first, it may take time for your provider to find the treatments that provide you relief. The treatments that work best for someone else may not work for you. Still, the sooner you begin exploring treatment options, the better off you’ll be. Don’t live with pain — or compromise your well-being — when you don’t have to”.18

Health Topics A-Z

Where may I find Health Topics related to the Vulvodynia?

In Health Topics A-Z you may find:

Health Topics A-Z

Links

Where may I find Links related to Vulvodynia?

Your Country may have Links similar to:

Links

This Links List to third party websites is neither comprehensive nor exhaustive. Inclusion on this Links List does not imply endorsement or recommendation. Non-inclusion on this Links List does not imply non-endorsement or non-recommendation. Third party websites are not under the control of Meno Martha International Menopause Directory. Third party websites may contain explicit medical images and/or sexual references. Please read Meno Martha International Menopause Directory’s Links Policy before proceeding to a Link. Please contact Webmaster if you experience a problem with a Link.

New or Updated

  1. About Vulval Pain
  2. Advice for Daily Life
  3. Australian and New Zealand Vulvovaginal Society: Patient Information
  4. Caredownthere.com.au
  5. Diagnosis
  6. Diagnosis and Management of Vulvodynia In Postmenopausal Women
  7. Differentiating Overlapping Symptoms of Vulvodynia and Pudendal Neuralgia
  8. Disorders of the Vulva: Common Causes of Vulvar Pain, Burning, and Itching
  9. Essential Information: Caring for Your Skin Down There
  10. Essential Information: See Your Doctor If
  11. Essential Information: Some Facts About the Vulva
  12. Get Support
  13. Get Support: Advice for Daily Living
  14. International Society for the Study of Vulvovaginal Diseases: Patient Handouts
  15. International Society for the Study of Women’s Sexual Health
  16. International Society for the Study of Women’s Sexual Health: Find A Provider
  17. Let’s Talk About Vulvas
  18. Medical Advice: Medical Exams
  19. Medical Advice: Vulval Pain
  20. Menopause Mindfulness: Embracing the Change of My Midlife
  21. Menopause Preparedness Toolkit: A Woman’s Empowerment Guide
  22. National Vulvodynia Association
  23. VulvodyniaNational Vulvodynia Association: For Patients – How NVA Can Help You
  24. National Vulvodynia Association: Other Resources
  25. National Vulvodynia Association: Patient Booklets
  26. Painful Intercourse (Dyspareunia)
  27. Patty Brisben Foundation for Women’s Sexual Health
  28. Patty Brisben Foundation for Women’s Sexual Health: Guide To Sexual Health Providers
  29. Patty Brisben Foundation for Women’s Sexual Health: New! Sexual Anatomy 101
    Patty Brisben Foundation for Women’s Sexual Health
  30. Vulvovaginal Pain Log Patty Brisben Foundation for Women’s Sexual Health: Vulvovaginal Pain Log
  31. Pelvic Exam
  32. Pelvicpain.org.uk [Pelvic Pain Support Network, United Kingdom]
  33. Perimenopause and Menopause Symptom Checklist
  34. Pudendal Nerve Entrapment
  35. Pudendal Nerve Entrapment (PNE)
  36. Pudendal Neuralgia
  37. Pudendal Neuralgia
  38. Pudendal Neuralgia
  39. Self-Help Tips
  40. Sex & Sexual Health
  41. The Itchy Vulva [Video]
  42. The Vulva: Irritation, Diagnosis & Treatment – Booklet
  43. Tips To Help Manage Menopause Symptoms
  44. Topical Treatment of Vulvodynia, Dyspareunia and Pudendal Neuralgia: A Single Clinic Audit of Amitriptyline and Oestriol In Organogel
  45. Treating Vulval Pain
  46. Vaginismus
  47. Vaginismus
  48. Vestibulodynia (Formerly Vulval Vestibulitis)
  49. Video Series-2022: Discussing Sexual Health Concerns With Your Health Care Professional
  50. Vulva & Vaginal Conditions
  51. Vulva & Vaginal Irritation: Management & Treatment [+Video]
  52. Vulva & Vaginal Irritation: What Is the Vulva? [+ Diagram]
  53. Vulva and Vaginal Health – Fact Sheet
  54. Vulva, Vagina, Ovaries & Uterus
  55. Vulval & Vaginal Conditions
  56. Vulval Anatomy
  57. Vulval Care Advice
  58. Vulval Pain
  59. Vulval Pain
  60. Vulval Pain Conditions
  61. Vulval Pain Society
  62. Vulval Pain, Vulvar Vestibulitis Syndrome (VVVS)
  63. Vulval Self-Examination
  64. Vulvar Anatomy
  65. Vulvar Disorders
  66. Vulvodynia
  67. Vulvodynia
  68. Vulvodynia
  69. Vulvodynia & Vestibulodynia
  70. Vulvodynia (Vulval Pain)
  71. Vulvodynia Treatments
  72. Vulvodynia: Diagnosis & Treatment
  73. Vulvodynia: Symptoms & Causes
  74. Vulvodynia: Symptoms & Causes – Alternative Medicine
  75. Vulvodynia: Symptoms & Causes – Lifestyle and Home Remedies
  76. Vulvovaginal Atrophy
  77. Vulvovaginal Health
  78. Vulvovaginal Pain
  79. Vulvovaginal Pain: What Is Vulvodynia and How Does It Relate To Vulvovaginal Pain?
  80. What Are the Symptoms of Vulvodynia?
  81. What Are the Treatments for Vulvodynia?
  82. What Causes Vulvodynia?
  83. What Causes Vulvodynia?
  84. What Is Vulvodynia? [+ Diagrams]
  85. What Is the Vulva?
  86. What’s Normal: What Is Normal Vulval & Vaginal Anatomy?
  87. When Sex Hurts – Podcast [Vaginismus and Vulvodynia]
  88. Women’s Health Week: Private Lives [Australia]
  89. Your Sex Life and the Waves of Change

Sources

Where may I find the Sources quoted?

You may find the Sources quoted:

Sources

  1. Vulvodynia & Vestibulodynia. Last Updated: 05 August 2021 | Last Reviewed: 14 May 2021. Jean Hailes for Women’s Health https://www.jeanhailes.org.au/health-a-z/vulva-vagina-ovaries-uterus/vulva-pain/vulvodynia-vestibulodynia Accessed: 06 April 2023
  2. Vulva & Vaginal Irritation. Last Updated: 11 October 2022 | Last Reviewed: 09 April 2021. Jean Hailes for Women’s Health https://jeanhailes.org.au/health-a-z/vulva-vagina-ovaries-uterus/vulva-vaginal-irritation Accessed: 06 April 2023
  3. Medical Advice: Vulval Pain – What Is Vulvodynia? Caredownthere.com.au https://www.caredownthere.com.au/_pages/advice.html Accessed: 06 April 2023
  4. Vulvodynia & Vestibulodynia: What Is Vulvodynia? Last Updated: 05 August 2021 | Last Reviewed: 14 May 2021. Jean Hailes for Women’s Health https://www.jeanhailes.org.au/health-a-z/vulva-vagina-ovaries-uterus/vulva-pain/vulvodynia-vestibulodynia Accessed: 06 April 2023
  5. What Is Vulvodynia? National Vulvodynia Association https://www.nva.org/whatIsVulvodynia.html Accessed: 06 April 2023
  6. Vulvodynia. Vulval Pain Society http://www.vulvalpainsociety.org/vps/index.php/vulval-conditions/vulvodynia Accessed: 06 April 2023
  7. Vulvodynia. Vulval Pain Society http://www.vulvalpainsociety.org/vps/index.php/vulval-conditions/vulvodynia Accessed: 06 April 2023
  8. What Is Vulvodynia? What Is Localized Vulvodynia? National Vulvodynia Association https://www.nva.org/whatIsVulvodynia.html Accessed: 06 April 2023
  9. What Is Vulvodynia? What Is Localized Vulvodynia? National Vulvodynia Association https://www.nva.org/whatIsVulvodynia.html Accessed: 06 April 2023
  10. Vulvodynia: What Are the Symptoms? Vulval Pain Society http://www.vulvalpainsociety.org/vps/index.php/vulval-conditions/vulvodynia Accessed: 06 April 2023
  11. Vulvodynia: What Are the Symptoms? Vulval Pain Society http://www.vulvalpainsociety.org/vps/index.php/vulval-conditions/vulvodynia Accessed: 06 April 2023
  12. What Is Vulvodynia? What Is Generalized Vulvodynia? National Vulvodynia Association https://www.nva.org/whatIsVulvodynia.html Accessed: 06 April 2023
  13. Vulvodynia: Symptoms & Causes – Overview. 13 September 2022. Mayo Clinic https://www.mayoclinic.org/diseases-conditions/vulvodynia/symptoms-causes/syc-20353423 Accessed: 06 April 2023
  14. Vulvodynia: What Causes It? Vulval Pain Society http://www.vulvalpainsociety.org/vps/index.php/vulval-conditions/vulvodynia Accessed: 06 April 2023
  15. Vulvodynia: Symptoms and Causes – What Causes Vulvodynia? Last Reviewed: 27 December 2022. Cleveland Clinic https://my.clevelandclinic.org/health/diseases/17878-vulvodyniaVulvodynia Accessed: 06 April 2023
  16. Vulvodynia & Vestibulodynia: What Is Vulvodynia? Last Updated: 05 August 2021 | Last Reviewed: 14 May 2021. Jean Hailes for Women’s Health https://www.jeanhailes.org.au/health-a-z/vulva-vagina-ovaries-uterus/vulva-pain/vulvodynia-vestibulodynia Accessed: 06 April 2023
  17. Vulvodynia: Symptoms & Causes – Overview. 13 September 2022. Mayo Clinic https://www.mayoclinic.org/diseases-conditions/vulvodynia/symptoms-causes/syc-20353423 Accessed: 06 April 2023
  18. Vulvodynia: Frequently Asked Questions – A Note From Cleveland Clinic. Last Reviewed: 27 December 2022. Cleveland Clinic https://my.clevelandclinic.org/health/diseases/17878-vulvodyniaVulvodynia Accessed: 06 April 2023
Topic Last Updated: 06 April 2023 – Topic Last Reviewed: 06 April 2023

Print Friendly, PDF & Email
/by